IMED2003 Study Guide - Midterm Guide: Health Informatics, Identifiability, De-Identification

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Document Summary

Health informatics ethics is a sub-set of medical ethics. All issues that apply to medical ethics in general, also apply to health informatics ethics. (e. g. for diagnosis, further research, storage, or data transmission), then the informatics professional must be sure that all the above principles are also being followed. Informatics professionals/researchers have ethical responsibilities regarding protecting data. The principles of beneficence and non-maleficence and non-transferability of the responsibility and accountability. Data may be collected, stored or disclosed in three mutually exclusive forms: Where the identity of a specific individual can reasonably be ascertained. From which identifiers have been removed and replaced by a code, But it remains possible to re-identify a specific individual by: That have never been labeled with individual identifiers. Or from which identifiers have been permanently removed. By means of which no specific individual can be identified. A subset of non-identifiable data are those that can be linked with other data.

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