Health Sciences 3910F/G Chapter Notes - Chapter 12: Systemic Lupus Erythematosus, Arthritis Care, Longitudinal Study
13 Apr 2020
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Transition of care and health-related outcomes in pediatric-onset systemic lupus. Felsenstein, s. , reiff, a. o. , & ramanathan, a. (2015). 67(11), 1521 1528. doi: 10. 1002/acr. 22611 (felsenstein, reiff & ramanathan, 2015, pp. 1521) Difficulties arise in establishing a relationship with the adult health care provider and the new expectation of patient autonomy. This is a period of personal and professional vulnerability. Transition has increasingly become an issue of relevance for patients and medical professionals. Adult patients with sle have a 2-3 fold mortality rate if onset happened in childhood. While mortality rate peaks in young adulthood for patients with sle. Continued acquiring of damage throughout adulthood leads to more medical problems, negative academic outcomes, and increased absence from work due to diseases. Data on the long-term outcomes in patients with sle after transition is significantly minimal. The multisystemic nature of sle presents different challenges when compared to other illnesses.
