CHST 2000 Lecture Notes - Lecture 5: Carolyn Ellis, Danah Boyd, Institutional Review Board

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Medical research: medical research could no longer be seen as routine medical care of patience. Ethics in practice: all professionals who conduct research must be careful to ensure that children understand the nature of their different and separate roles, children know the different people. Formal review networks: research ethics committees (recs, serve as gatekeepers, decide which research should or shouldn"t be conducted and how it. Institutional review board (irb) more in the states is conducted: you fill out a form, email it in, carleton ethics review board. Problems with these boards: aware of different communities/practices/cultural understandings, often left up to the participant to follow or not, and also left up to supervisor. Three frameworks for research ethics: principles, outcomes, rights, *other ones to think about but these just from the text* Principles: doing good research because it is the right thing to do, respect for personal integrity and autonomy, justice, avoiding harm, doing good.

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