Class Notes (807,001)
Canada (492,560)
Health Studies (1,161)
HLTC22H3 (110)
Anna Walsh (54)
Lecture 7

Lecture 7.doc

5 Pages
Unlock Document

University of Toronto Scarborough
Health Studies
Anna Walsh

Ethical Considerations in Research on Health and Aging1Ethical issues KayserJones JKoenig B A 1994 issues with qualitative or ethnographic research among elderly for all researchersPrinciples of ethical research respect beneficence justiceproblemstrong reciprocal bonds bw researcher and informantsMISSINGBiomedical Background Beecher listed controversial issues such as willowbrook incident in which mentally retarded children were injected with hepatitis1966 first regulation to protect human subjects southam injected cancer cells in elderly people1974 national research act established Presidents commission for protection of human subjects of biomedical and behaviour researchall institutions must have institutional review boardProfessional Codes of Ethics in the late 1960s anthropologists were forced to deal with negative impact of ethnographic work in areas such as southeast asia latin america in 1971 American anthropological association first adopted professional responsibilitiescodes emphasize researchers ethical obligations and raises awareness but does not solve problemsfundamental principles are not always easily applied to unique fieldwork situationsEthical Issues in Qualitative Process IRB in observational research many public settings has no review so1 observations are recorded so human subjects can be identified2 observations recorded could place a risk of criminal or civil liability 3 research deals with sensitive aspects of subjects behaviourobservation invasion of privacy burdensome for researcher and informants to interrupt and get permission from each personImp issues for qualitative informed consent when to intervene privacy and confidentiality Assessing risk vs Benefit assessing potential harm to informants and considering methods to minimize or eliminate ittechniques need to be modified to avoid fatigue since an interview can be harmful for themInformed ConsentKey elements providing info about research comprehensive info voluntary participation freedom to withdrawmeaningful social bonds may be developed which makes it hard to withdraw from the projectDecisional Capacity esp in cognitively impaired elders identified as the ability to comprehend info relevant to decision the ability to deliberate about choices according to ones personal values and goals the ability to communicate effectively with others Privacy and Confidentiality indv have control over when and how communication about themselves is given to others and how the private info is treated Anonymity and concealing identity is idealAdvocacy and Interventionsome theoriest feel advocacy is important as it is a responsibility intervention has big responsibilities of advocacy as well as for other informants in the studyCase Study Mrs Smith 85 year oldalzheimers arthiritis hypothyroidism1
More Less

Related notes for HLTC22H3

Log In


Don't have an account?

Join OneClass

Access over 10 million pages of study
documents for 1.3 million courses.

Sign up

Join to view


By registering, I agree to the Terms and Privacy Policies
Already have an account?
Just a few more details

So we can recommend you notes for your school.

Reset Password

Please enter below the email address you registered with and we will send you a link to reset your password.

Add your courses

Get notes from the top students in your class.