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HLTC22H3 (110)
Anna Walsh (54)

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Health Studies
Anna Walsh

Lec 6Ethical Considerations in Research on Health and Aging 1Ethical issues KayserJones JKoenig B A 1994 issues with qualitative or ethnographic research among elderly for all researchersPrinciples of ethical research respect beneficence justiceproblemstrong reciprocal bonds bw researcher and informantsMISSINGBiomedical BackgroundBeecher listed controversial issues such as willowbrook incident in which mentally retarded children were injected with hepatitis 1966 first regulation to protect human subjects southam injected cancer cells in elderly people 1974 national research act established Presidents commission for protection of human subjects of biomedical and behaviour research all institutions must have institutional review boardProfessional Codes of Ethicsin the late 1960s anthropologists were forced to deal with negative impact of ethnographic work in areas such as southeast asia latin americain 1971 American anthropological association first adopted professional responsibilities codes emphasize researchers ethical obligations and raises awareness but does not solve problems fundamental principles are not always easily applied to unique fieldwork situationsEthical Issues in Qualitative Process IRBin observational research many public settings has no review so 1 observations are recorded so human subjects can be identified 2 observations recorded could place a risk of criminal or civil liability3 research deals with sensitive aspects of subjects behaviour observation invasion of privacy burdensome for researcher and informants to interrupt and get permission from each person Imp issues for qualitative informed consent when to intervene privacy and confidentiality Assessing risk vs Benefitassessing potential harm to informants and considering methods to minimize or eliminate it techniques need to be modified to avoid fatigue since an interview can be harmful for themInformed Consent Key elements providing info about research comprehensive info voluntary participation freedom to withdrawmeaningful social bonds may be developed which makes it hard to withdraw from the projectDecisional Capacity esp in cognitively impaired eldersidentified as the ability to comprehend info relevant to decisionthe ability to deliberate about choices according to ones personal values and goalsthe ability to communicate effectively with others Privacy and Confidentialityindv have control over when and how communication about themselves is given to others and how the private info is treated Anonymity and concealing identity is idealAdvocacy and Intervention some theoriest feel advocacy is important as it is a responsibilityintervention has big responsibilities of advocacy as well as for other informants in the studyCase Study Mrs Smith 85 year oldalzheimers arthiritis hypothyroidismgenerally alert with activities but sometimes confused
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