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Lecture 11

Lecture 11 Readings - Family Histories in Genetic Research

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Health Sciences
Health Sciences 2000A/B
Leichelle Little

LECTURE 11 READINGS: FAMILY HISTORIES IN GENETIC RESEARCH – THE PRIVACY PARADOX ASHG Family Medical History and Privacy Advisory Statement • Should family members about whom you collect only medical history information for your research be considered "human subjects"? • Research protocol may be eligible if these conditions are met: o Research involves no more than minimal risks to the subject (in this case, the family members) o Waiver will not adversely affect the rights and welfare of the subjects o Research could not practicably be carried out without the waiver o Whenever appropriate, subjects will be provided with additional pertinent information after participation Privacy and Ethics in Pediatric Environmental Health Research – Protecting Families and Communities • Background: In pediatric environment health research, information about family members is often directly sought or indirectly obtained in the process of identifying child risk factors and helping to tease apart and identify interactions between genetic and environmental factors. However, federal regulations governing human subjects researc
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