EEX2000 Notes 9/25

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Education - Special Education, School Psychology and Early Childhood Studies
EEX 2000
Penny Cox

Impact of Disabilities: Home Family Climate and Disability  We will use the term “family climate” to refer to the general atmosphere in the home.  Family climate can depends upon how well the family works as a unit  Is it inviting? Is it uninviting? Etc.  How does the family view the disability? Bad, good, etc?  Recognition of disability can be influenced by past experiences.  Religious beliefs are often an important part of how families consider disability.  Families assimilate info about disability to develop perceptions and understanding of disability.  People have expectations of routine and consistency.  Without routine, we find that our lives can be chaotic. Families must find ways to incorporate their disabled family member into the routine. (CULTURE) (RELIGION) (SOCIAL EXPECTATIONS) Experience, knowledge, and beliefs influence perceptions of disabilities. What is believed about “personhood” (collective or independent?) What is perceived as “normal” (expectations of behavior and socializing) What is believed about “equality” (is everyone supposed to be the same, do the  This includes parental responsibility! Must make an effort! Family Ecology  Family ecology refers to all elements that make up the family unit. o Are families operating in isolation? o Are they well connected? o Does everyone play an equal role in work-load?  Family ecology that results in positive family climate allows family members to participate in expected activities.  Many factors affect ability to sustain routines.  Poverty can lead to many difficulties with finances in regards to disability. Parent Roles and Responsibilities  What roles and responsibilities do parents have within the family? o Money, moral guidance, childrearing, limits, food, transportation, safety, develop language, nurture, cultural identity, nurture, behavior/discipline, love  What roles and responsibilities do children have within the family? o Obey/discipline, chores, school, grow, recreation, learn from mistakes, respectful, loving, kind  Disabilities can cause difficulties in learning and teaching. Siblings with Disabilities Some similarities exist among siblings: 1) They find positive and negative results. 2) They grow toward acceptance of the disability. 3) Siblings experience a range of emotional responses. 4) Siblings generally report positive family relationships.  Guilty that they do not have a disability  Know they have to be more careful with their sibling  Resentful of sibling’s extra attention  Protective over sibling  May experience embarrassment Disadvantages of having a sibling with ID or Autism:  Infringements on time  Less socialization  Limited spontaneity; need for rigid routines  Child
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