PSYC 3110 Lecture Notes - Lecture 18: Rightnow Technologies, Henrietta Lacks, Family Medicine
29 Mar 2018
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Ex: cystic fibrosis (very aware of the benefit of research: boundaries between research and clinical practice indicate that what is going on is research. There is the danger, if it is a patient, what you are doing is part of their treatment and it is not. Contemporary trends in health & biomedicine: ethical, legal, social implications (elsi) Think back to the human genome project : genetic research, biobanks & cohort studies, electronic health records, genetics research, genetics and social science (being a participant in this, incidental findings (tension or conflict between ethics) Obligation to inform versus respect of autonomy of the participant. The quality: risk of privacy infringement employment, insurance, mortgage. Now a greater push for open science: biobanks & cohort studies, research platforms (working together, using the tissues of now) Informed consent: you can always withdraw but not really because it does not delete from the backups, making it more identifiable: cohort studies.
