ADMS 3502 Lecture Notes - Lecture 10: Neuroblastoma, Palliative Care, Childrens Hospital
21 May 2020
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Document Summary
At the age of 5, julie was diagnosed with stage iv neuroblastoma. Her initial prognosis was poor, with less than a 30% survival rate over 5 years. Julie received 6 cycles of a multi-agent chemotherapy, a surgical resection of residual primary, stem cell harvest, radiation to the tumour bed in her abdomen, and an autologous stem cell rescue. 18 months after her surgery, julie had a distant relapse (high neck nodes). After another surgical resection and local radiotherapy, several therapeutic options were presented to her parents, for example retonic acid and chemotherapy. In paediatric cases where the child is not considered competent to make their own decisions, as would usually be the case in a 5 year old, the parents are legally designated as the surrogate decision-makers. Most paediatric hospitals practice family-centred care , rather than just patient-centred care for this reason.
