EDPS 49100 Lecture 2: Collab w Families Chp3 n.3
24 Jan 2018
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Document Summary
Stages & tasks for the family: identification of disability, experiences period of disbelief and denial, may be heavy with sadness and disappointment, reflects on the uncertainty of the future. Identifies child"s strengths and limitations: learns about needed services, reaches out for professional help. Reflection about self and family: recognizes own strengths and coping skills, recognizes own disappointment and anger, reaches out to informal support network, obtains professional support, negotiates family resources to support child. Advocacy & empowerment: grows in resilience, participates in school and teams, advocates for appropriate services, learns about legal rights, joins parent coalitions, negotiates resources across agencies. Appreciation & enlightenment: reflects on how the challenge has helped the family find new strengths, acknowledges the child"s special talents, differentiates between child"s needs and own, recognizes broader positive impacts of disability. Parents and family members are the best sources of knowledge about their child. Parents" resilience may not be immediately appreciable but should be identified and supported.
