MDU 4003 Lecture Notes - Lecture 1: Patient Protection And Affordable Care Act, Safran, Primary Care Physician
Document Summary
The power of pooling medical data: privacy is important; strict laws limit whatever researchers can see/know about you, what if your medical data could be used anonymously by anyone seeking to test a hypothesis? . * john willbanks wondered if the desire to protect our privacy is slowing research, and if opening up medical data could lead to a wave of health care innovation. Video: clinical study thread of narrative hypothesis, experimentation in human and informed consent, how we do vast majority of clinical work, form the basis on how we investigate. Commons a public good we can build out of a private good; something we build together because we think its important. (voluntarily) [at least some] people really like to share as their form of control. This is the year of patients rising. : dave debronkart had rare/terminal cancer, he turned to an online group of patients and found medical treatment that saved his life.